Therapeutic itineraries of the population with Spinocerebellar Ataxia type 7 in Veracruz (Mexico): an anthropological approach to low prevalence diseases
This article explores the therapeutic itineraries of people living with spinocerebellar ataxia type 7, a genetic and neurodegenerative disease, classified as rare and with a high prevalence among the inhabitants of five municipalities located in the central part of the state of Veracruz, Mexico. Bas...
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| Formato: | Artículo revista |
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Facultad de Filosofía y Humanidades. Museo de Antropología
2025
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| Acceso en línea: | https://revistas.unc.edu.ar/index.php/antropologia/article/view/42179 |
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I10-R372-article-42179 |
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ojs |
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Universidad Nacional de Córdoba |
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I-10 |
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R-372 |
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Revista del Museo de Antropología |
| language |
Español |
| format |
Artículo revista |
| topic |
Ataxia type 7 Low prevalence diseases Therapeutic itineraries Ataxia tipo 7 Enfermedades de baja prevalencia Itinerarios terapéuticos Ataxia tipo 7 Doenças de baixa prevalência Vias terapêuticas |
| spellingShingle |
Ataxia type 7 Low prevalence diseases Therapeutic itineraries Ataxia tipo 7 Enfermedades de baja prevalencia Itinerarios terapéuticos Ataxia tipo 7 Doenças de baixa prevalência Vias terapêuticas Moctezuma Balderas, Andrea Cristina Muñoz Martínez, Rubén Moctezuma Balderas, Andrea Cristina Muñoz Martínez, Rubén Moctezuma Balderas, Andrea Cristina Muñoz Martínez, Rubén Therapeutic itineraries of the population with Spinocerebellar Ataxia type 7 in Veracruz (Mexico): an anthropological approach to low prevalence diseases |
| topic_facet |
Ataxia type 7 Low prevalence diseases Therapeutic itineraries Ataxia tipo 7 Enfermedades de baja prevalencia Itinerarios terapéuticos Ataxia tipo 7 Doenças de baixa prevalência Vias terapêuticas |
| author |
Moctezuma Balderas, Andrea Cristina Muñoz Martínez, Rubén Moctezuma Balderas, Andrea Cristina Muñoz Martínez, Rubén Moctezuma Balderas, Andrea Cristina Muñoz Martínez, Rubén |
| author_facet |
Moctezuma Balderas, Andrea Cristina Muñoz Martínez, Rubén Moctezuma Balderas, Andrea Cristina Muñoz Martínez, Rubén Moctezuma Balderas, Andrea Cristina Muñoz Martínez, Rubén |
| author_sort |
Moctezuma Balderas, Andrea Cristina |
| title |
Therapeutic itineraries of the population with Spinocerebellar Ataxia type 7 in Veracruz (Mexico): an anthropological approach to low prevalence diseases |
| title_short |
Therapeutic itineraries of the population with Spinocerebellar Ataxia type 7 in Veracruz (Mexico): an anthropological approach to low prevalence diseases |
| title_full |
Therapeutic itineraries of the population with Spinocerebellar Ataxia type 7 in Veracruz (Mexico): an anthropological approach to low prevalence diseases |
| title_fullStr |
Therapeutic itineraries of the population with Spinocerebellar Ataxia type 7 in Veracruz (Mexico): an anthropological approach to low prevalence diseases |
| title_full_unstemmed |
Therapeutic itineraries of the population with Spinocerebellar Ataxia type 7 in Veracruz (Mexico): an anthropological approach to low prevalence diseases |
| title_sort |
therapeutic itineraries of the population with spinocerebellar ataxia type 7 in veracruz (mexico): an anthropological approach to low prevalence diseases |
| description |
This article explores the therapeutic itineraries of people living with spinocerebellar ataxia type 7, a genetic and neurodegenerative disease, classified as rare and with a high prevalence among the inhabitants of five municipalities located in the central part of the state of Veracruz, Mexico. Based on a qualitative methodology, ethnographic work was carried out from November 2022 to March 2023 in Tlaltetela, one of the municipalities affected by this disease. Currently, there is no research in the field of Social Anthropology on this disease in the context of Mexico and Latin America, so the findings of this research allow understanding the social and cultural effects of living with this condition, emphasizing the barriers in the access to resources that are available in the absence of specialized treatments, as well as the role played by civil society and the self-care practices of this population. |
| publisher |
Facultad de Filosofía y Humanidades. Museo de Antropología |
| publishDate |
2025 |
| url |
https://revistas.unc.edu.ar/index.php/antropologia/article/view/42179 |
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2025-05-10T05:28:37Z |
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2025-05-10T05:28:37Z |
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I10-R372-article-421792025-04-25T14:28:45Z Therapeutic itineraries of the population with Spinocerebellar Ataxia type 7 in Veracruz (Mexico): an anthropological approach to low prevalence diseases Itinerarios terapéuticos de la población con Ataxia espinocerebelosa tipo 7 en Veracruz (México): una aproximación antropológica a las enfermedades de baja prevalencia Itinerários terapêuticos da população com Ataxia Espinocerebelar tipo 7 em Veracruz (México): uma abordagem antropológica para doenças de baixa prevalência Moctezuma Balderas, Andrea Cristina Muñoz Martínez, Rubén Moctezuma Balderas, Andrea Cristina Muñoz Martínez, Rubén Moctezuma Balderas, Andrea Cristina Muñoz Martínez, Rubén Ataxia type 7 Low prevalence diseases Therapeutic itineraries Ataxia tipo 7 Enfermedades de baja prevalencia Itinerarios terapéuticos Ataxia tipo 7 Doenças de baixa prevalência Vias terapêuticas This article explores the therapeutic itineraries of people living with spinocerebellar ataxia type 7, a genetic and neurodegenerative disease, classified as rare and with a high prevalence among the inhabitants of five municipalities located in the central part of the state of Veracruz, Mexico. Based on a qualitative methodology, ethnographic work was carried out from November 2022 to March 2023 in Tlaltetela, one of the municipalities affected by this disease. Currently, there is no research in the field of Social Anthropology on this disease in the context of Mexico and Latin America, so the findings of this research allow understanding the social and cultural effects of living with this condition, emphasizing the barriers in the access to resources that are available in the absence of specialized treatments, as well as the role played by civil society and the self-care practices of this population. El presente artículo explora los itinerarios terapéuticos de las personas que viven con ataxia espinocerebelosa tipo 7, enfermedad genética y neurodegenerativa, catalogada como rara y que encuentra una alta prevalencia entre los pobladores de cinco municipios ubicados en la parte central del estado de Veracruz, México. A partir de una metodología cualitativa, se realizó trabajo etnográfico de noviembre de 2022 a marzo de 2023 en Tlaltetela, uno de los municipios afectados por dicha enfermedad. En la actualidad, no existen investigaciones del campo de la Antropología Social sobre dicha enfermedad en el contexto de México y América Latina, por lo que los hallazgos de la presente investigación, permiten comprender los efectos sociales y culturales de vivir con esta afección, haciendo énfasis en las barreras en el acceso a recursos que están disponibles frente a la inexistencia de tratamientos especializados, así como en el papel que juega la sociedad civil y las prácticas de auto atención de dicha población. Este artigo explora os itinerários terapêuticos de pessoas que vivem com ataxia espinocerebelar tipo 7, uma doença genética e neurodegenerativa, classificada como rara e com alta prevalência entre os habitantes de cinco municípios localizados na parte central do estado de Veracruz, México. Usando uma metodologia qualitativa, o trabalho etnográfico foi realizado de novembro de 2022 a março de 2023 em Tlaltetela, um dos municípios afetados por essa doença. Atualmente, não há pesquisas no campo da Antropologia Social sobre essa doença no contexto do México e da América Latina, portanto, os resultados desta pesquisa nos permitem compreender os efeitos sociais e culturais de viver com essa condição, enfatizando as barreiras no acesso aos recursos disponíveis na ausência de tratamentos especializados, bem como o papel desempenhado pela sociedade civil e as práticas de autocuidado dessa população. Facultad de Filosofía y Humanidades. Museo de Antropología 2025-04-24 info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Peer reviewed article Artículo revisado por pares Artigo revisado por pares application/pdf https://revistas.unc.edu.ar/index.php/antropologia/article/view/42179 10.31048/dsx50d55 Revista del Museo de Antropología; ##issue.vol## 18 ##issue.no## 1 (2025); 269-282 Revista del Museo de Antropología; Vol. 18 Núm. 1 (2025); 269-282 Revista del Museo de Antropología; v. 18 n. 1 (2025); 269-282 1852-4826 1852-060X 10.31048/31a9wq12 spa https://revistas.unc.edu.ar/index.php/antropologia/article/view/42179/48834 Derechos de autor 2025 Andrea Cristina Moctezuma Balderas, Rubén Muñoz Martínez https://creativecommons.org/licenses/by-nc-sa/4.0 |