The ethics of biomedical big data
This book presents cutting edge research on the new ethical challenges posed by biomedical Big Data technologies and practices. 'Biomedical Big Data' refers to the analysis of aggregated, very large datasets to improve medical knowledge and clinical care. The book describes the ethical pro...
Guardado en:
| Otros Autores: | , |
|---|---|
| Formato: | Libro electrónico |
| Lenguaje: | Inglés |
| Publicado: |
Switzerland :
Springer International,
c2016.
|
| Colección: | Law, governance and technology series ;
v. 29. |
| Materias: | |
| Acceso en línea: | Solo para usuarios autorizados |
| Aporte de: | Registro referencial: Solicitar el recurso aquí |
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| 082 | 0 | 4 | |a 174.957 |2 23 |
| 099 | |a Recurso electrónico en INTERNET | ||
| 245 | 0 | 4 | |a The ethics of biomedical big data |h [recurso electrónico] / |c Brent Daniel Mittelstadt, Luciano Floridi, editors. |
| 260 | |a Switzerland : |b Springer International, |c c2016. | ||
| 300 | |a 1 recurso en línea (xvi, 480 p.) : |b il. | ||
| 490 | 1 | |a Law, governance and technology series ; |v vol. 29 | |
| 516 | |a Libro electrónico. | ||
| 500 | |a Título tomado de la pantalla de presentación (visto 1 de agosto de 2017) | ||
| 538 | |a Modo de acceso: a través de Internet. | ||
| 504 | |a Incluye referencias bibliográficas. | ||
| 505 | 0 | |a Introduction / Brent Daniel Mittelstadt and Luciano Floridi -- Part I. Balancing Individual and Collective Interests: Strictly Biomedical? Sketching the Ethics of the Big Data Ecosystem in Biomedicine / Effy Vayena and Urs Gasser -- Using Transactional Big Data for Epidemiological Surveillance: Google Flu Trends and Ethical Implications of Infodemiology / Annika Richterich -- Denmark at a Crossroad? Intensified Data Sourcing in a Research Radical Country / Klaus Hoeyer -- A Critical Examination of Policy-Developments in Information Governance and the Biosciences / Edward Hockings -- Part II. Privacy and Data Protection: Many Have It Wrong : Samples Do Contain Personal Data: The Data Protection Regulation as a Superior Framework to Protect Donor Interests in Biobanking and Genomic Research / Dara Hallinan and Paul De Hert -- Whats Wrong with the Right to Genetic Privacy: Beyond Exceptionalism, Parochialism and Adventitious Ethics / Bryce Goodman -- Part III. Consent: How Data Are Transforming the Landscape of Biomedical Ethics: The Need for ELSI Metadata on Consent / J. Patrick Woolley -- On the Compatibility of Big Data Driven Research and Informed Consent: The Example of the Human Brain Project / Markus Christen, Josep Domingo-Ferrer, Bogdan Draganski, Tade Spranger, and Henrik Walter -- | |
| 505 | 0 | |a Part IV. Ethical Governance: Big Data Governance: Solidarity and the Patient Voice / Simon Woods -- Premises for Clinical Genetics Data Governance: Grappling with Diverse Value Logics / Polyxeni Vassilakopoulou, Espen Skorve, and Margunn Aanestad -- State Responsibility and Accountability in Managing Big Data in Biobank Research: Tensions and Challenges in the Right of Access to Data / Aaro Tupasela and Sandra Liede -- Big Data, Small Talk: Lessons from the Ethical Practices of Interpersonal Communication for the Management of Biomedical Big Data / Paula Boddington -- Part V. Professionalism and Ethical Duties Researchers Duty to Share Pre-publication Data: From the Prima Facie Duty to Practice / Christoph Schickhardt, Nelson Hosley, and Eva C. Winkler -- Reporting and Transparency in Big Data: The Nexus of Ethics and Methodology / Stuart G. Nicholls, Sinéad M. Langan, and Eric I. Benchimol -- Creating a Culture of Ethics in Biomedical Big Data: Adapting Guidelines for Professional Practice to Promote Ethical Use and Research Practice / Rochelle E. Tractenberg -- Part VI. Foresight: The Ethics and Politics of Infrastructures: Creating the Conditions of Possibility for Big Data in Medicine / Linda F. Hogle -- Ethical Reuse of Data from Health Care: Data, Persons and Interests / Peter Mills -- The Ethics of Big Data: Current and Foreseeable Issues in Biomedical Contexts / Brent Daniel Mittelstadt and Luciano Floridi. | |
| 520 | |a This book presents cutting edge research on the new ethical challenges posed by biomedical Big Data technologies and practices. 'Biomedical Big Data' refers to the analysis of aggregated, very large datasets to improve medical knowledge and clinical care. The book describes the ethical problems posed by aggregation of biomedical datasets and re-use/re-purposing of data, in areas such as privacy, consent, professionalism, power relationships, and ethical governance of Big Data platforms. Approaches and methods are discussed that can be used to address these problems to achieve the appropriate balance between the social goods of biomedical Big Data research and the safety and privacy of individuals. Seventeen original contributions analyse the ethical, social and related policy implications of the analysis and curation of biomedical Big Data, written by leading experts in the areas of biomedical research, medical and technology ethics, privacy, governance and data protection. The book advances our understanding of the ethical conundrums posed by biomedical Big Data, and shows how practitioners and policy-makers can address these issues going forward. | ||
| 650 | 0 | |a Bioethics. | |
| 650 | 0 | |a Life sciences |x Databases |x Moral and ethical aspects. | |
| 650 | 0 | |a Big data |x Moral and ethical aspects. | |
| 650 | 7 | |a Bioética. |2 UDESA | |
| 650 | 7 | |a Ciencias biológicas |x Bases de datos |x Aspectos morales y éticos. |2 UDESA | |
| 650 | 7 | |a Grandes volúmenes de datos |x Aspectos morales y éticos. |2 UDESA | |
| 700 | 1 | |a Mittelstadt, Brent Daniel, |e ed. | |
| 700 | 1 | |a Floridi, Luciano, |d 1964- |e ed. | |
| 830 | 0 | |a Law, governance and technology series ; |v v. 29. | |
| 856 | 4 | 0 | |z Solo para usuarios autorizados |u https://link-springer-com.eza.udesa.edu.ar/book/10.1007%2F978-3-319-33525-4 |