Ethical challenges in global health-related stigma research [Separata] /
At a recent Science of Stigma Reduction workshop comprising 60 stigma researchers from the USA and low and middle-income countries, the need for more robust and critical discussion of the ethics of the research was highlighted. In this paper we describe, illustrate through cases, and critically exam...
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| Formato: | Capítulo de libro |
| Lenguaje: | Inglés Español |
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| Aporte de: | Registro referencial: Solicitar el recurso aquí |
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| 100 | 1 | |9 34218 |a Millum, Joseph | |
| 245 | 1 | 0 | |a Ethical challenges in global health-related stigma research [Separata] / |c Joseph Millum ... [y otros] |h DIG |
| 300 | |a pp. 1-9 | ||
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| 520 | |a At a recent Science of Stigma Reduction workshop comprising 60 stigma researchers from the USA and low and middle-income countries, the need for more robust and critical discussion of the ethics of the research was highlighted. In this paper we describe, illustrate through cases, and critically examine key ethical challenges that are more likely to arise because a research study focuses on health-related stigma or involves stigmatized groups or conditions. We examine the ethics of this research from two perspectives. First, through the lens of overprotection, where we discuss how the perception of stigma can impede ethical research, disrespect research participants, and narrow the research questions. Second, through the lens of research risks, where we consider how research with stigmatized populations can unintentionally result in harms. Research-related harms to participants include potential breaches of confidentiality and the exacerbation of stigma. Potential harms also extend to third parties, including families and populations who may be affected by the dissemination of research results. | ||
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| 650 | 4 | |9 261 |a INVESTIGACION CIENTIFICA | |
| 650 | 4 | |9 4113 |a ANALISIS DE RIESGO | |
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| 650 | 4 | |9 10195 |a PRIVACIDAD | |
| 690 | |a BIOETICA | ||
| 700 | 1 | |9 34219 |a Campbell, Megan L. | |
| 700 | 1 | |9 10137 |a Luna, Florencia | |
| 700 | 1 | |9 34220 |a Malekzadeh, Arianne | |
| 700 | 1 | |9 34221 |a Abdool Karim, Q. | |
| 773 | |d London : BioMed Central, 2019 |g v. 17, no. 84 |t Bmc medicine |x 1741-7015 | ||
| 942 | |c ART | ||