Bioethics in the big data era : health care and beyond [Separata] /

‘Big data’ and data-intensive research approaches are rapidly gaining momentum in health and biomedical research, with potential to transform health at all levels from personal to public. The use of ‘big data’ for health research, however, raises a number of ethical challenges. In this paper I discu...

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Detalles Bibliográficos
Autor principal: Chan, Sarah
Formato: Artículo
Lenguaje:Inglés
Materias:
INVESTIGACION MEDICA
BIG DATA
BANCOS DE DATOS
ETICA
SALUD PUBLICA
Aporte de:Registro referencial: Solicitar el recurso aquí
Biblioteca Cs. Sociales E. Faletto (FLACSO) de FLACSO. Sede Académica Argentina
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041 1 |a eng 
100 |9 27388  |a Chan, Sarah 
245 1 0 |a Bioethics in the big data era :   |b health care and beyond [Separata] /   |c Sarah Chan  |h DIG 
300 |a pp. 3-32 
504 |a incl. ref. 
520 |a ‘Big data’ and data-intensive research approaches are rapidly gaining momentum in health and biomedical research, with potential to transform health at all levels from personal to public. The use of ‘big data’ for health research, however, raises a number of ethical challenges. In this paper I discuss ethical aspects of the advent of big data in health. I argue that although public discourse has focused on immediate concerns relating to use of individuals’ information, ‘big health data’ requires us to explore alternative conceptual approaches to research ethics, including the ‘social contract’ model. Further, we need to think beyond health research uses of data to the social consequences of big data epistemology and practice, and the moral implications of ‘datafying’ the human. 
650 0 |a  INVESTIGACION MEDICA  |9 2776 
650 4 |a BIG DATA  |9 27390 
650 0 |a  BANCOS DE DATOS  |9 4277 
650 0 |a ETICA  |9 1395 
650 0 |a SALUD PUBLICA  |9 1451 
690 |a BIOETICA  |9 2962 
773 0 |d Barcelona : Observatorio de Bioética y Derecho, FLACSO. Programa Argentina, 2017  |g no. 41  |t Revista de bioética y derecho & Perspectivas bioéticas  |x 1886-5887 
942 |c ART 

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