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03045nam a2200361 a 4500 |
| 001 |
ELB163369 |
| 003 |
FINmELB |
| 005 |
20241227144632.0 |
| 006 |
m o d | |
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cr cn||||||||| |
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110316s2011 enk sb 001 0 eng d |
| 010 |
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|z 2011011621
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| 020 |
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|a 9780199909742
|q (e-book)
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| 020 |
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|z 9780195390384
|q (paper)
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| 035 |
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|a (OCoLC)690088075
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| 040 |
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|a FINmELB
|c FINmELB
|d FINmELB
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| 050 |
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4 |
|a QH438.7
|b .A26 2011
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| 082 |
0 |
4 |
|a 174.2/96042
|2 22
|
| 245 |
0 |
0 |
|a Achieving justice in genomic translation
|h [electronic resource] :
|b re-thinking the pathway to benefit /
|c edited by Wylie Burke ... [et al.].
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| 260 |
|
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|a Oxford ;
|a New York :
|b Oxford University Press,
|c 2011.
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| 300 |
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|a x, 212 p.
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| 504 |
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|a Includes bibliographical references and index.
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| 505 |
0 |
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|a Achieving justice in genomic translation: re-thinking the pathway to benefit / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks.
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| 588 |
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|a Description based on metadata supplied by the publisher and other sources.
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| 590 |
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|a Electronic reproduction. Santa Fe, Arg.: elibro, 2022. Available via World Wide Web. Access may be limited to eLibro affiliated libraries.
|
| 650 |
|
0 |
|a Human genetics
|x Research
|x Moral and ethical aspects.
|
| 650 |
|
0 |
|a Genomics
|x Research
|x Moral and ethical aspects.
|
| 650 |
|
0 |
|a Genetic screening
|x Moral and ethical aspects.
|
| 655 |
|
4 |
|a Electronic books.
|
| 700 |
1 |
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|a Burke, Wylie.
|
| 797 |
2 |
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|a elibro, Corp.
|
| 856 |
4 |
0 |
|u https://elibro.net/ereader/ufasta/163369
|
| 999 |
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|c 205134
|d 205134
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