Health-related quality of life in 153 children with neuromuscular disorders in Latin America: is it age, functional dependence or diagnosis?
Neuromuscular diseases impact on children’s health related quality of life but there is a lack of studies in Latin America that measured this construct. To respond to this need, this study aimed to explore quality of life and its relationship with age, functional dependence and specific diagnosis...
Guardado en:
| Autores principales: | , , , , , |
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| Formato: | Artículo |
| Lenguaje: | Inglés |
| Publicado: |
Elsevier
2024
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| Materias: | |
| Acceso en línea: | https://repositorio.uca.edu.ar/handle/123456789/19045 |
| Aporte de: |
| Sumario: | Neuromuscular diseases impact on children’s health related quality of life but there is a lack of studies in Latin
America that measured this construct. To respond to this need, this study aimed to explore quality of life and its
relationship with age, functional dependence and specific diagnosis in children and adolescents in Latin America.
A cross-sectional correlation study was carried out with 133 caregivers on children (2–18 years old) with various
neuromuscular disorders. Parents reported on their children’s health related quality of life through the PedsQL
GCS and the PedsQL NMM. Differences in quality of life were found when comparing children with high functional
dependence with those with mild dependence (p = 0.05). No significant differences were found regarding
the child diagnosis. Finally, quality of life was highly correlated with the child’s age, even when controlling for
functional dependence differences between ages. Children and adolescents with neuromuscular show a diminished
health related quality of life, not only in physical functioning but in their psychosocial functioning. Health
related quality of life may vary according to the child’s age and functional dependence. |
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