Burden on informal caregivers of people with schizophrenia: still a challenge for mental health care reform

The purpose of this study was to review the concept of burden on family and informal caregivers, especially of people with schizophrenia. It is a polysemic concept, which refers to the relationship between adults, where the caregiver assumes a responsibility for the other they could not anticipate,...

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Autores principales: Alvarado, Rubén, Oyanedel, Ximena, Aliste, Francisco, Pereira, Claudia, Soto, Felipe, de la Fuente, María
Formato: Artículo revista
Lenguaje:Español
Publicado: Escuela de Salud Pública y Ambiente. Fac. Cs. Médicas UNC 2014
Materias:
carga de los cuidadores
Esquizofrenia
Reforma de la Atención en Salud Mental
Acceso en línea:https://revistas.unc.edu.ar/index.php/RSD/article/view/7020
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Revista de Salud Pública de Universidad Nacional de Córdoba
id I10-R360-article-7020
record_format ojs
spelling I10-R360-article-70202025-04-03T12:07:36Z Burden on informal caregivers of people with schizophrenia: still a challenge for mental health care reform Carga de los cuidadores informales de personas con esquizofrenia: Un desafío pendiente para la reforma de la atención en salud mental Alvarado, Rubén Oyanedel, Ximena Aliste, Francisco Pereira, Claudia Soto, Felipe de la Fuente, María carga de los cuidadores Esquizofrenia Reforma de la Atención en Salud Mental The purpose of this study was to review the concept of burden on family and informal caregivers, especially of people with schizophrenia. It is a polysemic concept, which refers to the relationship between adults, where the caregiver assumes a responsibility for the other they could not anticipate, which is not paid, where the subject of caring is disabled and cannot maintain reciprocal obligations, as it is socially expected in a relationship between adults. We differentiate the objective aspects (reduction of free time, attention and care, adverse health effects, economic costs, etc.) from the subjective aspects (emotional distress) of this burden. A few studies performed tend to show that it is a frequent and relevant problem that has become more evident during the process of psychiatric care reform, product of a more important role and greater empowerment of these informal caregivers. We reviewed the various factors related to the extent of this burden, emphasizing those related to health services and the importance of offering psycho-education, therapy and support to those who take care of these patients. El propósito de este trabajo fue revisar el concepto de carga de los familiares y cuidadores informales, en especial de personas que sufren esquizofrenia. Se trata de un concepto polisémico, que se refiere a la relación entre individuos adultos, donde el cuidador asume una responsabilidad por el otro, que no pudo anticipar, que no es remunerada, el que es objeto del cuidado, está discapacitado y no puede mantener obligaciones recíprocas que son las socialmente esperadas para una relación entre adultos. Se diferencian los aspectos objetivos (disminución del tiempo libre, atención y cuidados, efectos negativos en la salud, costos económicos, etc.) y subjetivos (distrés emocional) de esta carga del cuidado. Los pocos estudios realizados tienden a mostrar que es un problema frecuente y relevante, que se ha hecho más visible durante los procesos de reforma a la atención psiquiátrica, producto de un rol más importante y un mayor empoderamiento de estos cuidadores informales. Se revisan los diferentes factores que se asocian a la magnitud de esta carga, destacando aquellos que se refieren a los servicios sanitarios y a la importancia de entregar acciones de psicoeducación, terapéuticas y de apoyo a quienes asumen el cuidado de estos pacientes. Escuela de Salud Pública y Ambiente. Fac. Cs. Médicas UNC 2014-04-01 info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion application/pdf https://revistas.unc.edu.ar/index.php/RSD/article/view/7020 10.31052/1853.1180.v15.n2.7020 Revista de Salud Pública; Vol. 15 Núm. 2 (2011); 6-17 1852-9429 1853-1180 10.31052/1853.1180.v15.n2 spa https://revistas.unc.edu.ar/index.php/RSD/article/view/7020/8086 Derechos de autor 1969 Universidad Nacional de Córdoba https://creativecommons.org/licenses/by-nc/4.0
institution Universidad Nacional de Córdoba
institution_str I-10
repository_str R-360
container_title_str Revista de Salud Pública
language Español
format Artículo revista
topic carga de los cuidadores
Esquizofrenia
Reforma de la Atención en Salud Mental
spellingShingle carga de los cuidadores
Esquizofrenia
Reforma de la Atención en Salud Mental
Alvarado, Rubén
Oyanedel, Ximena
Aliste, Francisco
Pereira, Claudia
Soto, Felipe
de la Fuente, María
Burden on informal caregivers of people with schizophrenia: still a challenge for mental health care reform
topic_facet carga de los cuidadores
Esquizofrenia
Reforma de la Atención en Salud Mental
author Alvarado, Rubén
Oyanedel, Ximena
Aliste, Francisco
Pereira, Claudia
Soto, Felipe
de la Fuente, María
author_facet Alvarado, Rubén
Oyanedel, Ximena
Aliste, Francisco
Pereira, Claudia
Soto, Felipe
de la Fuente, María
author_sort Alvarado, Rubén
title Burden on informal caregivers of people with schizophrenia: still a challenge for mental health care reform
title_short Burden on informal caregivers of people with schizophrenia: still a challenge for mental health care reform
title_full Burden on informal caregivers of people with schizophrenia: still a challenge for mental health care reform
title_fullStr Burden on informal caregivers of people with schizophrenia: still a challenge for mental health care reform
title_full_unstemmed Burden on informal caregivers of people with schizophrenia: still a challenge for mental health care reform
title_sort burden on informal caregivers of people with schizophrenia: still a challenge for mental health care reform
description The purpose of this study was to review the concept of burden on family and informal caregivers, especially of people with schizophrenia. It is a polysemic concept, which refers to the relationship between adults, where the caregiver assumes a responsibility for the other they could not anticipate, which is not paid, where the subject of caring is disabled and cannot maintain reciprocal obligations, as it is socially expected in a relationship between adults. We differentiate the objective aspects (reduction of free time, attention and care, adverse health effects, economic costs, etc.) from the subjective aspects (emotional distress) of this burden. A few studies performed tend to show that it is a frequent and relevant problem that has become more evident during the process of psychiatric care reform, product of a more important role and greater empowerment of these informal caregivers. We reviewed the various factors related to the extent of this burden, emphasizing those related to health services and the importance of offering psycho-education, therapy and support to those who take care of these patients.
publisher Escuela de Salud Pública y Ambiente. Fac. Cs. Médicas UNC
publishDate 2014
url https://revistas.unc.edu.ar/index.php/RSD/article/view/7020
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first_indexed 2024-09-03T22:25:16Z
last_indexed 2025-05-10T05:20:21Z
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