Guidelines for incorporating scientific knowledge and practice on rare diseases into higher education: neuronal ceroid lipofuscinoses as a model disorder model disorder.

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This article addresses the educational issues associated with rare diseases (RD) and in particular the Neuronal Ceroid Lipofuscinoses (NCLs, or CLN diseases) in the curricula of Health Sciences and Professional's Training Programs. Our aim is to develop guidelines for improving scientific kno...

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Autores principales: Kohan, R., Cismondi, I.A., Adams, H., Bond, M., Brown, R., Cooper, J.D., Krupnik de Hidalgo, P., Kleine Holthaus, S.M., Mole, S.E., Mugnaini, J., Oller de Ramirez, A.M., Pesaola, F., Platt, F.M., Noher de Halac, I., Rautenberg, G.
Formato: article
Lenguaje:Inglés
Publicado: Biochimica et Biophysica Acta (BBA) - Molecular Basis of Disease. 2017
Materias:
Rare diseases
Neuronal ceroid-lipofuscinoses
Education
Research
Patient advocacy
Acceso en línea:http://hdl.handle.net/11086/4912
Aporte de:
Repositorio Digital Universitario (UNC) de Universidad Nacional de Córdoba

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